Transition readiness measures for emerging adults with chronic disease: A systematic review

Sarah Parfeniuk, Kristin Petrovic, Peggy MacIsaac, Karen Cook, Gwen Rempel

Research output: Contribution to journalLiterature reviewpeer-review


Background: Transition from pediatric to adult health-
care for adolescents with chronic health conditions has
emerged as a critical period influencing health outcomes.
Suitable transition readiness measures are necessary
to facilitate effective planning. Currently, there is lit-
tle consensus about well-validated transition readiness
measures. The purpose of this systematic review was to
identify best practices in transition readiness measure-
ment for adolescents and young adults with chronic health
Data sources: Academic databases searched included
PubMed, Cumulative Index to Nursing and Allied Health
Literature, Google Scholar and Athabasca University
Library’s Discover.
Study selection: Articles were included that discussed
the development and psychometric properties of transi-
tion readiness measures for adolescents and young adults
(11–25 years) with chronic health conditions and/or that
utilized a previously developed measure.
Data extraction: The primary and secondary reviewers
extracted data from the selected articles as per the data
extraction tool developed for this review.
Results: Forty-eight articles, representing 19 tools, were
included in the review. Ten of the tools were disease-
specific; nine were disease-neutral. According to the
Cohen criteria, eight measures were “well-established
assessments”. The Transition Readiness Assessment
Questionnaire was deemed the best measure of transition
readiness available. The literature search included only
articles published in peer-reviewed journals; measures
nearing completion or awaiting publication were not
included. In addition, only English manuscripts were
included, many from North America.
Conclusions: Despite national practice guidelines and
ongoing policy development, there is slow movement
towards achieving a gold standard or best-practice
measure of transition readiness.
Original languageCanadian English
Pages (from-to)1-16
Number of pages16
JournalJournal of Transition Medicine
Issue number1
Publication statusPublished - 2020


  • adolescents and young adults; best prac- tice; chronic health conditions; measurement; systematic review; transition readiness


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