Transition readiness measures for emerging adults with chronic disease: A systematic review

Sarah Parfeniuk, Kristin Petrovic, Peggy MacIsaac, Karen Cook, Gwen Rempel

    Research output: Contribution to journalLiterature reviewpeer-review


    Background: Transition from pediatric to adult health-
    care for adolescents with chronic health conditions has
    emerged as a critical period influencing health outcomes.
    Suitable transition readiness measures are necessary
    to facilitate effective planning. Currently, there is lit-
    tle consensus about well-validated transition readiness
    measures. The purpose of this systematic review was to
    identify best practices in transition readiness measure-
    ment for adolescents and young adults with chronic health
    Data sources: Academic databases searched included
    PubMed, Cumulative Index to Nursing and Allied Health
    Literature, Google Scholar and Athabasca University
    Library’s Discover.
    Study selection: Articles were included that discussed
    the development and psychometric properties of transi-
    tion readiness measures for adolescents and young adults
    (11–25 years) with chronic health conditions and/or that
    utilized a previously developed measure.
    Data extraction: The primary and secondary reviewers
    extracted data from the selected articles as per the data
    extraction tool developed for this review.
    Results: Forty-eight articles, representing 19 tools, were
    included in the review. Ten of the tools were disease-
    specific; nine were disease-neutral. According to the
    Cohen criteria, eight measures were “well-established
    assessments”. The Transition Readiness Assessment
    Questionnaire was deemed the best measure of transition
    readiness available. The literature search included only
    articles published in peer-reviewed journals; measures
    nearing completion or awaiting publication were not
    included. In addition, only English manuscripts were
    included, many from North America.
    Conclusions: Despite national practice guidelines and
    ongoing policy development, there is slow movement
    towards achieving a gold standard or best-practice
    measure of transition readiness.
    Original languageCanadian English
    Pages (from-to)1-16
    Number of pages16
    JournalJournal of Transition Medicine
    Issue number1
    Publication statusPublished - 2020


    • adolescents and young adults; best prac- tice; chronic health conditions; measurement; systematic review; transition readiness


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