@article{59d3977f6e3940e88d5bbb5fd8757cc6,
title = "The Process of Family Management When a Baby Is Diagnosed With a Lethal Congenital Condition",
abstract = "The Family Management Style Framework (FMSF) was used as a conceptual basis for secondary data analysis of 55 previously conducted interviews with mothers and fathers of children with a lethal congenital condition from two surgical treatment eras. The directed content analysis was guided by a coding structure developed from family management dimensions identified in prior research of family response to childhood chronic conditions. Results indicated that application of the FMSF was helpful in differentiating families and their processes of family management at the onset of their infant's illness through to surviving the first surgery and going home. The dimensions of Illness View and Child Identity were central to the parents' capacity to manage their baby's illness demands within their family context. Applying a robust family framework to a complex neonatal condition at illness onset provides compelling direction for clinical interventions and their rigorous evaluation.",
keywords = "Family Management Style Framework, family management, hypoplastic left heart syndrome, lethal congenital condition, parents, secondary analysis",
author = "Rempel, {Gwen R.} and Catriona Blythe and Rogers, {Laura G.} and Vinitha Ravindran",
note = "Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The first author was supported by a Heart and Stroke Foundation of Canada (HSFC) Nursing Research Fellowship and a Canadian Institutes of Health Research Doctoral Fellowship when conducting the Norwood study. While conducting the Sano study that was funded by a University of Alberta Hospital Foundation Medical Research Award, the first author was supported by a TD Financial Group/Mazankowski Alberta Heart Institute Clinical Fellowship, and a HSFC Research Scholarship. Funding Information: This study was made possible through summer studentships funded by the University of Alberta Women and Children{\textquoteright}s Health Research Institute and a Canadian Institutes of Health Research Health Professional Student Research Award through the Faculty of Nursing, University of Alberta. The authors would also like to thank the participants in the original studies, Sandy MacPhail, Project Coordinator, and Louisa Fricker, Research Coordinator. ",
year = "2012",
month = feb,
doi = "10.1177/1074840711427143",
language = "English",
volume = "18",
pages = "35--64",
number = "1",
}