Parenting children with hypoplastic left heart syndrome: Finding a balance

Anra Lee, Gwen R. Rempel

    Research output: Contribution to journalJournal Articlepeer-review

    27 Citations (Scopus)

    Abstract

    Purpose. This study described the role normalization played for parents related to their young children with hypoplastic left heart syndrome. Design and Methods. The data source for this secondary analysis was 30 interviews with 16 parents. Results. Three themes were identified: normalization, parental perception of child vulnerability, and optimistic appraisal. Parents engaged in a balancing act between worrying about their children's vulnerability and marveling at their children's survival, using normalization as a coping strategy. Practice Implications. Nurses can collaborate with parents to determine strategies to restore a sense of normalcy to simultaneously promote child independence and parent well-being.

    Original languageEnglish
    Pages (from-to)179-189
    Number of pages11
    JournalJournal for Specialists in Pediatric Nursing
    Volume16
    Issue number3
    DOIs
    Publication statusPublished - Jul. 2011

    Keywords

    • Congenital heart disease
    • Hypoplastic left heart syndrome
    • Normalization
    • Parenting
    • Qualitative research
    • Secondary analysis

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