TY - JOUR
T1 - Parent-mediated intervention
T2 - Adherence and adverse effects
AU - McConnell, David
AU - Parakkal, Miriam
AU - Savage, Amber
AU - Rempel, Gwendolyn
N1 - Publisher Copyright:
© 2014 Informa UK Ltd. All rights reserved.
PY - 2015/5/1
Y1 - 2015/5/1
N2 - Purpose: The purpose of this study was to investigate parent implementation of home-based therapy regimens, and the relationship between implementation and family-level outcomes. Method: A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the Family Life Survey, which incorporated child and family measures, and items measuring parent implementation of home-based therapy regimens. Results: Parents are more likely to implement therapeutic regimens when these are "enfolded" into other daily activities and routines. If parents have to "find a slot" in the daily routine to implement therapy, they will sacrifice personal leisure, participation in paid work, and time spent with other family members. Greater parent sacrifices/trade-offs was negatively associated with family well-being. Conclusion: As a general rule, children do well when their families do well, and families do well when they have the resources they need to juggle work and family and care demands. Recruiting parents as interventionists can tax family resources. Rehabilitation professionals must weigh up the pros and cons of parent-mediated intervention, and look to enfolding therapy into the everyday family routine.Implications for RehabilitationParents are more likely to implement prescribed therapeutic activities and exercises when these are "enfolded" into the everyday family routine.Higher levels of parental adherence and implementation of home-based therapy programs is associated with poorer family well-being.Rehabilitation professionals must weigh the pros and cons of parent-mediated intervention, and help families find ways to enfold intervention into their daily routine.
AB - Purpose: The purpose of this study was to investigate parent implementation of home-based therapy regimens, and the relationship between implementation and family-level outcomes. Method: A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the Family Life Survey, which incorporated child and family measures, and items measuring parent implementation of home-based therapy regimens. Results: Parents are more likely to implement therapeutic regimens when these are "enfolded" into other daily activities and routines. If parents have to "find a slot" in the daily routine to implement therapy, they will sacrifice personal leisure, participation in paid work, and time spent with other family members. Greater parent sacrifices/trade-offs was negatively associated with family well-being. Conclusion: As a general rule, children do well when their families do well, and families do well when they have the resources they need to juggle work and family and care demands. Recruiting parents as interventionists can tax family resources. Rehabilitation professionals must weigh up the pros and cons of parent-mediated intervention, and look to enfolding therapy into the everyday family routine.Implications for RehabilitationParents are more likely to implement prescribed therapeutic activities and exercises when these are "enfolded" into the everyday family routine.Higher levels of parental adherence and implementation of home-based therapy programs is associated with poorer family well-being.Rehabilitation professionals must weigh the pros and cons of parent-mediated intervention, and help families find ways to enfold intervention into their daily routine.
KW - Developmental disability
KW - Family-centered care
KW - Home programs
KW - Parent
KW - Therapy
UR - http://www.scopus.com/inward/record.url?scp=84927729871&partnerID=8YFLogxK
U2 - 10.3109/09638288.2014.946157
DO - 10.3109/09638288.2014.946157
M3 - Journal Article
C2 - 25073583
AN - SCOPUS:84927729871
SN - 0963-8288
VL - 37
SP - 864
EP - 872
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 10
ER -