"It's No Big Deal": Adolescents With Congenital Heart Disease

Kathleen Shearer, Gwen R. Rempel, Colleen M. Norris, Joyce Magill-Evans

    Research output: Contribution to journalJournal Articlepeer-review

    30 Citations (Scopus)

    Abstract

    Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.

    Original languageEnglish
    Pages (from-to)28-36
    Number of pages9
    JournalJournal of Pediatric Nursing
    Volume28
    Issue number1
    DOIs
    Publication statusPublished - Jan. 2013

    Keywords

    • Adolescents
    • Congenital heart disease
    • Qualitative research
    • Quality of life
    • Transition

    Fingerprint

    Dive into the research topics of '"It's No Big Deal": Adolescents With Congenital Heart Disease'. Together they form a unique fingerprint.

    Cite this