"It's No Big Deal": Adolescents With Congenital Heart Disease

Kathleen Shearer; Gwen R. Rempel; Colleen M. Norris; Joyce Magill-Evans

doi:10.1016/j.pedn.2012.03.031

"It's No Big Deal": Adolescents With Congenital Heart Disease

Kathleen Shearer, Gwen R. Rempel, Colleen M. Norris, Joyce Magill-Evans

University of Alberta

Research output: Contribution to journal › Journal Article › peer-review

30 Citations (Scopus)

Abstract

Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.

Original language	English
Pages (from-to)	28-36
Number of pages	9
Journal	Journal of Pediatric Nursing
Volume	28
Issue number	1
DOIs	https://doi.org/10.1016/j.pedn.2012.03.031
Publication status	Published - Jan. 2013

Keywords

Adolescents
Congenital heart disease
Qualitative research
Quality of life
Transition

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10.1016/j.pedn.2012.03.031

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title = "{"}It's No Big Deal{"}: Adolescents With Congenital Heart Disease",

abstract = "Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.",

keywords = "Adolescents, Congenital heart disease, Qualitative research, Quality of life, Transition",

author = "Kathleen Shearer and Rempel, {Gwen R.} and Norris, {Colleen M.} and Joyce Magill-Evans",

note = "Funding Information: This study was funded by a Women & Children's Health Research Institute, University of Alberta Innovation Grant—Stollery Children's Hospital Foundation. ",

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AU - Rempel, Gwen R.

AU - Norris, Colleen M.

AU - Magill-Evans, Joyce

N1 - Funding Information: This study was funded by a Women & Children's Health Research Institute, University of Alberta Innovation Grant—Stollery Children's Hospital Foundation.

PY - 2013/1

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N2 - Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.

AB - Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.

KW - Adolescents

KW - Congenital heart disease

KW - Qualitative research

KW - Quality of life

KW - Transition

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"It's No Big Deal": Adolescents With Congenital Heart Disease

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