Innovations in research with medically fragile populations: Using bulletin board focus groups

Karen Cook, Susan Jack, Hal Siden, Lehana Thabane, Gina Browne

    Research output: Contribution to journalJournal Articlepeer-review

    13 Citations (Scopus)

    Abstract

    A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population is difficult because of the complexity of their conditions, the extensive personal and equipment supports that limit feasibility for travel, and divergent communication abilities. Therefore, we undertook a descriptive case study using an asynchronous modification of an online focus group, a bulletin board focus group (BBFG). The greatest strengths of the BBFG are the appeal of this methodology for young adults and the multi day focus group becomes both a community and an intervention. An important limitation of this method was participant follow through on discussion threads. This BBFG provided rich and varied types of data, and very positive participant experiences.

    Original languageEnglish
    Article number77
    JournalQualitative Report
    Volume19
    Issue number39
    Publication statusPublished - 29 Sep. 2014

    Keywords

    • Bulletin board focus group
    • Case studies
    • Disability/disabled persons
    • End-Of-Life issues
    • Focus groups
    • Illness and disease
    • Young adults

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