Innovations in research with medically fragile populations: Using bulletin board focus groups

Karen Cook; Susan Jack; Hal Siden; Lehana Thabane; Gina Browne

Innovations in research with medically fragile populations: Using bulletin board focus groups

Karen Cook, Susan Jack, Hal Siden, Lehana Thabane, Gina Browne

Faculty of Health Disciplines

Research output: Contribution to journal › Journal Article › peer-review

13 Citations (Scopus)

Abstract

A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population is difficult because of the complexity of their conditions, the extensive personal and equipment supports that limit feasibility for travel, and divergent communication abilities. Therefore, we undertook a descriptive case study using an asynchronous modification of an online focus group, a bulletin board focus group (BBFG). The greatest strengths of the BBFG are the appeal of this methodology for young adults and the multi day focus group becomes both a community and an intervention. An important limitation of this method was participant follow through on discussion threads. This BBFG provided rich and varied types of data, and very positive participant experiences.

Original language	English
Article number	77
Journal	Qualitative Report
Volume	19
Issue number	39
Publication status	Published - 29 Sep. 2014

Keywords

Bulletin board focus group
Case studies
Disability/disabled persons
End-Of-Life issues
Focus groups
Illness and disease
Young adults

Cite this

@article{ad47c1b8b8ab4a0b88081838fa887e58,

title = "Innovations in research with medically fragile populations: Using bulletin board focus groups",

abstract = "A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population is difficult because of the complexity of their conditions, the extensive personal and equipment supports that limit feasibility for travel, and divergent communication abilities. Therefore, we undertook a descriptive case study using an asynchronous modification of an online focus group, a bulletin board focus group (BBFG). The greatest strengths of the BBFG are the appeal of this methodology for young adults and the multi day focus group becomes both a community and an intervention. An important limitation of this method was participant follow through on discussion threads. This BBFG provided rich and varied types of data, and very positive participant experiences.",

keywords = "Bulletin board focus group, Case studies, Disability/disabled persons, End-Of-Life issues, Focus groups, Illness and disease, Young adults",

author = "Karen Cook and Susan Jack and Hal Siden and Lehana Thabane and Gina Browne",

note = "Publisher Copyright: {\textcopyright} Karen Cook, Susan Jack, Hal Siden, Lehana Thabane, Gina Browne, and Nova Southeastern University.",

year = "2014",

month = sep,

day = "29",

language = "English",

volume = "19",

number = "39",

}

TY - JOUR

T1 - Innovations in research with medically fragile populations

T2 - Using bulletin board focus groups

AU - Cook, Karen

AU - Jack, Susan

AU - Siden, Hal

AU - Thabane, Lehana

AU - Browne, Gina

N1 - Publisher Copyright: © Karen Cook, Susan Jack, Hal Siden, Lehana Thabane, Gina Browne, and Nova Southeastern University.

PY - 2014/9/29

Y1 - 2014/9/29

N2 - A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population is difficult because of the complexity of their conditions, the extensive personal and equipment supports that limit feasibility for travel, and divergent communication abilities. Therefore, we undertook a descriptive case study using an asynchronous modification of an online focus group, a bulletin board focus group (BBFG). The greatest strengths of the BBFG are the appeal of this methodology for young adults and the multi day focus group becomes both a community and an intervention. An important limitation of this method was participant follow through on discussion threads. This BBFG provided rich and varied types of data, and very positive participant experiences.

AB - A new group of medically fragile young adults are graduating from pediatric palliative care programs with limited expectations to live beyond early adulthood, and no comparable adult services to support their complex needs. Accessing this population is difficult because of the complexity of their conditions, the extensive personal and equipment supports that limit feasibility for travel, and divergent communication abilities. Therefore, we undertook a descriptive case study using an asynchronous modification of an online focus group, a bulletin board focus group (BBFG). The greatest strengths of the BBFG are the appeal of this methodology for young adults and the multi day focus group becomes both a community and an intervention. An important limitation of this method was participant follow through on discussion threads. This BBFG provided rich and varied types of data, and very positive participant experiences.

KW - Bulletin board focus group

KW - Case studies

KW - Disability/disabled persons

KW - End-Of-Life issues

KW - Focus groups

KW - Illness and disease

KW - Young adults

UR - http://www.scopus.com/inward/record.url?scp=84907529877&partnerID=8YFLogxK

M3 - Journal Article

AN - SCOPUS:84907529877

SN - 1052-0147

VL - 19

JO - Qualitative Report

JF - Qualitative Report

IS - 39

M1 - 77

ER -

Innovations in research with medically fragile populations: Using bulletin board focus groups

Abstract

Keywords

Other files and links

Fingerprint

Cite this